Take charge of your Lupus
How can you take care of your near and dear one with lupus fatigue
- Your family and friends - your biggest support network---Take your near and dear one with you when you consult your Rheumatologist. Only then would the family understand the nature of the disease. It is otherwise very difficult for anybody to understand what you are going through. Your relatives may be confused, angry & at times frustrated with the varying lupus symptoms you keep having from time to time. Once they know more about lupus, I’m sure your family would be the biggest support network u would have to help you through the flares. Remember that pain is real when you get others to believe in it.
- Recognize a flare early. Flare is state when lupus becomes active. You may have a worsening of the existing symptoms or development of new symptoms. With time, you would be able to pick up the onset of a flare early. Flares are a part & parcel of lupus & the best way to tackle them is to recognize one early & seek medical attention asap. You may also speak to your Rheumatologist & get an emergency medicine plan ready in case of a flare so that you don’t waste time if you don’t get an immediate appointment.
- Be careful while out in the sun—Ultraviolet rays can trigger the skin rash as well as the lupus activity. That does not mean that you should remain indoors all the time; but avoid strong sun. Apply a good sunscreen generously. Apply it to the face, nape of the neck, forearms, hands. Preferably use a long sleeve dress to minimize the exposure to sunrays.
- Know the drugs that cause photosensitivity –You can get the entire list at http://emedicine.medscape.com/article/1049648-overview. Show a printout of this list to every Doctor you see (nobody knows it by rote) so that photosensitive drugs are avoided.
- Don’t go into a nutshell – If properly treated, Lupus is very much a controllable ailment. Don’t get too stressed by the diagnosis or by thought of how you would fare in the long run. Most of the patients have mild lupus & do well in the long run. Do not distance yourself from others. You may join a lupus support group.
- Be a part of local & online support group.
- Cope effectively with lupus fatigue.